PROVIDING ADVOCACY

Patient Care

 MyPatientRights.org, is an online resource to help patients identify when, why and how to file a com-plaint with their health plan and/or the DMHC to demand the care they need and deserve.

 

Parenting

For educational 504 plans (CA K-12) click below. For preschool click here, abuse allegations here,  and download this brochure for UpperEducation.pdf for college.

 

 

VISIT SITE

READ MORE

Blood Safety

For up-to-date Blood Safety Information click here and we recommend registering with the

The Patient Notification System

to stay informed.

REGISTER

HFA's

The Bleeders’ Bill of Rights Download

  • American Federation of Hemophilia Symposium

     

    Symposium is a family-friendly educational meeting dedicated to improving

    the lives of those living with and affected by a bleeding disorder.

     

    This past March, over 800 moms, dads, caregivers, spouses, siblings, and stakeholders from across the country joined us in Tampa to help

    us celebrate our 20th anniversary!

  • World Hemophilia Day

    2017  pending

    World Hemophilia Day is sponsored by the World Federation of Hemophilia and in general is in spring of each year. WFH holds this annual event to encourage the global bleeding disorders community to speak out. Or efforts include reaching out to young members of the community to promote participation and develop leadership.

     

    Click here for more information including download-able resources to support

    your World Hemophilia Day activities.

  • Bleeding Disorder month is MARCH

    HFNC partners with the Hemophilia Federation of America (HFA), along with other organizations to commemorate March as National Hemophilia Awareness Month.

    We encourage patients affected by a bleeding disorder to spread the word about Hemophilia Awareness Month. This could be a simple Facebook or Twitter

    post or you can give presentations in schools, and share information with family and friends.  Visit the bleeding disorder sections on the AFH  website here to learn more and download valuable resources to download for  National Hemophilia Awareness Month.

  • NHF Washington Days

    The National Hemophilia Foundation’s (NHF’s) Washington Days is the premiere advocacy event on Capitol Hill for the bleeding disorders community.  Join more than 300 individuals with bleeding disorders and their families as we educate our elected officials about the unique needs of the bleeding disorders community.  Washington Days is a great opportunity to have your voice heard, network with other families from around the country and learn the key issues affecting our community. To learn more click here.

COPYRIGHT 2016. ALL RIGHTS RESERVED. NO PART OF THIS WEBSITE MAY BE REPRODUCED WITHOUT WRITTEN CONSENT.

THIS SITE WAS DONATED BY A PARENT AND DESIGNER AT AGRAPHIQUEBOUTIQUE.COM